The spirit of patience

“What’s a trulop?” Quinn leaned over the rail of the top bunk, his dark eyes intent on mine. “A what?” “A trulop, you know, like in the song?” I looked at him with a question in my eyes. “On the first day of Christmas my trulop gave to me…,” he sang in his high quavering…

This season of thankfulness

Can I do it? You may. Will you say those weird words? I will. What is it about a flame that speaks to our souls?  The Chanukkah blessings are the only Hebrew I know. I’ve always loved the third blessing, spoken only on the first night, which thanks God for sustaining us and enabling us…

Smoke and mirrors

Poop rained down on my desk last week.  A seal in the floor under the toilet Matt installed in our master bath had gone bad, and waste water was leaking very, very slowly, soaking the floor, then the ceiling of the sun room below, finding the path of least resistance through the boards, wires, and…

Five little pumpkins

Wednesday was a busy day in a busy week of a busy month in a busy fall … you get the idea.  I had over-committed to volunteering in Quinn’s class, accidentally scheduling my mystery reader appearance in the morning and a regular volunteer session in the afternoon.  The kids had dentist appointments at 2:00 and…

The whole village

We have two extra treatments a day now, plus the regular nebulizer treatments every four hours.  The regimen has made a huge difference and it’s fun to watch Graham sleep like a normal baby, his hands thrown over his head in touch down pose, his breaths coming easily and quietly through his tiny nose.  The…

Learning curve

The nebulizer is running, propped by a blanket directly in front of his sleeping face.  I’m a pro now, three days in, no longer intimidated by the tubes, the mask, the humming machine, and the medicine.  I know to let him fall asleep first, after a bottle, so that he won’t scream and fight the…

On the line

The call came on Monday around 10:15.  My heart stopped beating for a moment and then restarted with a resounding whomp. The result is we will welcome a new member of our family tomorrow, if only for a short while. But that is starting the story of the last few weeks at the end.  Of…

Not really taking names, more like barely maintaining altitude

Our fall schedule is kicking my ass.  Does this happen to everyone, this phenomenon wherein something new is added to life and something has to go and it’s often a thing I value highly, but don’t absolutely need need, like to survive? I have a very part-time job this year, which I REALLY (almost shockingly)…

Something right

A gargantuan hobo spider guarded the steps to the basement early one morning last week.  It waved its two front legs alarmingly in the direction of the panicked huddle I had quickly formed with the children in the kitchen, out of scurry range, but with the beast still in sight. “We have to kill it,…

The unbearable sadness of being sad

There’s a picture from Labor Day last year.  It’s a shot of me and three close friends from an odd low perspective – probably because my Dad was in an old lawn chair too close to the ground. We’re seated in more rickety lawn chairs around a make-shift table in the middle of the mowed…